Evolith
2017-09-28 22:37:14
- #1
I can really relate to that. Mine is almost 3 years old and I understand the horror. But still, you don’t have just one child. You also have yourselves and want more children. That means you have to do justice to yourselves and the others as well. You won’t be able to afford a disability-friendly bungalow without EVERYONE making compromises. For you, that means you sleep with the older child downstairs and can get to him quickly. The youngest sleep upstairs and have to “do without” your proximity, and the older one simply has to stay downstairs. You have to organize your life so that everyone enjoys being downstairs and is therefore often around him. And never forget that it can also be nice for the siblings to have their “normal” space upstairs. As a severely disabled child, your son will always require a lot of your attention. Upstairs, however, you belong to the others. You can very well set up “exclusive zones” like this. Not least for yourselves.
If you are so set on your bungalow, try your luck. But make sure it is really disability-friendly. Have a real expert advise you. You might also be able to draw on experiences from self-help groups. Always keep in mind during your planning that the wheelchair will get bigger and the boy will grow heavier. I wish you success in finding the right house together.
All the best to you and your boy.
If you are so set on your bungalow, try your luck. But make sure it is really disability-friendly. Have a real expert advise you. You might also be able to draw on experiences from self-help groups. Always keep in mind during your planning that the wheelchair will get bigger and the boy will grow heavier. I wish you success in finding the right house together.
All the best to you and your boy.